Rare Diseases South Africa is a registered NPO and NPC.

Tel: +27 10 594 3844

Postal: Suite 135, Private Bag X43, Sunninghill, 2157

NPO: 120-991     PBO: 930044787    NPC: 2016/071131/08

  • White Facebook Icon
  • White Instagram Icon

©2018 Rare Diseases South Africa

Our Impact...

Job creation: Two thirds of each bear sold are paid back to the lady who made that bear. We have had over 60 woman generate income from this project since its inception.

Community Investment:  One third of each bear sold are invested back into the project, creating earning opportunities, skills training and project development initiatives to ensure sustainability.

Donations via Care4Rare programme: Over 500 #RareBears have been donated to rare disease patients to date.

We are committed to:

  • Empowering individuals, as well as growing programme initiatives.

  • Improving overall sustainability of the #RareBearProject.

  • Providing support, and companionship to those impacted by rare diseases.

  • Providing a continuous income stream for the woman making #RareBears.

  • Reducing unemployment within the Kya Sands community.

  • Up-skilling and training woman of Kya Sands to generate income outside the #RareBearProject.

  • Nurturing future entrepreneurs.